Coming from an ALS family member... Thank you so much for posting this!! I wholeheartedly agree with your stance. I lost my dad to ALS 5 years ago. Out of all the organizations that provide support to ALS patients, families, and caregivers, the ALS Association was able to provide us the most practical support (durable med. equip., support groups, etc.) HANDS DOWN!! There is 1 embryonic stem cell study they are affiliated with that is being funded by 1 ALSA donor. That's all!! This is not where all 7% of their research donations go. The VAST majority of donations received go to support the patients, families, and caregivers make it through their last days.