MILESTONE! Breathing tube is finally GONE! His comfort level just went through the roof! This is now one very contented baby. I believe the worst is behind us. Oh how thankful we are!
Look who took to his pacifier right away! Way to go, Martin boy!
A beautiful sight! In my opinion, the best screen yet of that breathing machine!
Hooray! Happy Extubation Day! We had a really exciting day in Charleston today! After a very long night, he finally got his breathing tube removed at 11:00am! His comfort level just went through the roof now that he doesn't have that hard,...[ abbreviated | read entire ]
Martin is making a strong comeback in his recovery. Eating well. And oxygen saturation is high.
My! What big feet you have, Martin!
Our other children are so happy to be safely back at home in Greenville.
It's Friday and our children safely made it back home to Greenville yesterday. They were SO happy to get back home after being gone for so long. I must say it was a great relief to get back home myself -- even if it was just for a few hours....[ abbreviated | read entire ]
Martin looked rather pale to us and not well after Sunday. It's been so rough on his tiny frame.
He looks better by the end of the day. But still very thin and rather pale. We hope he will have better days ahead.
Justin celebrated a birthday. He's now 5. We love all our children dearly, but being away from home makes it difficult to give them the same kind of attention they need.
The last few days have been a bit rough. It's been a combination of a lot of things really but staying 5 weeks anywhere away from home will start taking its toll. We are winding down here at the rental house and are mentally getting prepared to...[ abbreviated | read entire ]
Martin still fighting through the recovery. This picture was taken the night before he pulled out the breathing tube.
The morning after putting him back on paralytic and re-inserting the breathing tube.
From Jamie: We had an incident early this morning at 5:15am where Martin extubated himself ahead of schedule. He was actually scheduled to be extubated at around noon today but here's what happened instead. They were weaning him off the...[ abbreviated | read entire ]
Looking at mommy and daddy's face! I wonder what he's thinking? That tape has a hard time sticking to his face for some reason. They have to keep putting layer upon layer on.
Martin trying to sleep with all that tape on his face.
As he becomes more awake and alert, he seems to be more uncomfortable. Poor baby cries but cannot make a sound because of the tube blocking his vocal chords. Seems his mouth is getting chapped too. It's really hard to watch helplessly not being able to hold and console him.
Jamie and I finally felt well enough to see Martin. And just to be safe, we were fully showered, masked, and sanitized before going to the hospital. We only stayed for a few minutes and kept arms-length away. He's definitely much more alert and...[ abbreviated | read entire ]
He looks very different with his eyes closed, but he's got big eyes when they're open! He's been more alert and awake the last few days.
Our daily view from the parking garage connector to MUSC.
It's been two whole days since the last time Jamie and I were able to see Martin. We've been really battling a bad case of sickness with our children back at the rental home here. They just got hit hard all of a sudden and we've been having to...[ abbreviated | read entire ]
He does not like that breathing tube. The thing that he hates the most is unfortunately the thing that he needs the most.
Taking every precaution. We are not sick ourselves (yet) but our kids are struggling with sickness back at the rental house.
Mommy, take me home! Poor guy really struggles with the tubes.
Today marks the first full week since Martin's surgery last Tuesday. We apologize for not posting any update yesterday but we are fighting a battle on two fronts at the moment. First, Martin is still fighting to keep that oxygen saturation...[ abbreviated | read entire ]
Day 5 Recovery. Chest tube removed and stable again after a rough night.
These stuffed toys have been so helpful propping up his legs and arms during recovery. As he grows up, these buddies will serve as reminders of his rocky birth.
I guess one of the nurses did this. This is attached to the oxygen line that's helping Martin to breathe. Oxygen level is Martin's biggest fight it seems.
Martin had a bit of a rough time late last night. We were at home sleeping but another family member was bedside all night and apparently at around 4am his oxygen saturation levels dropped again. The doctors and nurses were all there helping him...[ abbreviated | read entire ]
Day 4 Recovery. Still a very sleepy baby. Poor guy has daddy's wild hair.
Nurses about to do "suctioning" of his lungs. He doesn't like this and tries to cry but cannot because of the breathing tube. Poor baby.
Peaceful again after the suctioning ordeal.
We continue to be thankful that Martin is stable and doing so well after his rough surgery. This morning, his oxygen levels were low again. Apparently a "normal" baby should have an oxygen saturation level of 95-100. An HLHS baby should have an...[ abbreviated | read entire ]
Day 3 Recovery. Martin is awake! One-week-old Martin wakes up to mommy's face after open-heart surgery.
Martin's chest is closed! Hooray!
He's awake! Early this morning, Martin began to awaken out of his deep sleep -- slowly. Every so often, he'll open his eyes and look straight at us! I don't know why it is -- but it's one of the most happy moments to witness him being awake...[ abbreviated | read entire ]