Martin had 24 hours of breastmilk which fattened him up (this is a good thing!). But blood was found again in his stool the next day.
We ran out to the store and got some things to apply to the ring of the bottle so he can smell something pleasant while trying to drink the Elecare formula again. We are willing to try anything. It is now or never.
Martin passed the swallow study with flying colors the second time around. He just sat there as still as could be even though he was overdue on his feeds. He did great!
We had a very great disappointment this morning. We found blood (again) in his stool. I can't even begin to tell you how so very crestfallen we both were. We had an absolutely GREAT day yesterday with Martin drinking from the bottle for the entire...[ abbreviated | read entire ]
He loves the breastmilk! He drank 65mL in 30 minutes by bottle!
Martin and Mommy share a moment after a great session with breastmilk. They let us try breastmilk by bottle one time. Turns out he loves it and drank better than ever!
Martin is all worn out after drinking a great meal! Apparently breastmilk has natural ingredients in it that makes babies sleepy after taking it.
The last 24 hours have been really tough with Martin being very fussy with his bottle-feedings. He would take a couple of gulps, then turn away and have this awful frown on his face -- generally, really fussy. We tried everything the therapist...[ abbreviated | read entire ]
First time trying a bottle! So far so good. No 'mechanical' swallowing issues -- just have to get him to enjoy drinking something that tastes awful and smells nasty.
Look at this! We're finally getting wheeled out of here after 6 weeks of being in the same PCICU room!
In a new bed. In a new room. In the Children's Hospital now. Next stop ... HOME!
It is now Friday -- today Martin is 6 weeks old. Since the last post, there have been a number of big steps -- strides, really. He had his swallow study on Wednesday and (barely!) passed it. But passed it he did and so they gave the green light to...[ abbreviated | read entire ]
I am feeling much better, Mommy! Now if they can just get that thing out of my nose. Martin is now over 5 weeks old.
With the pacing wires out of his chest, Martin is able to sleep on his tummy for the first time. MUCH better!
The battle scars. The long line in the middle is where he had open-heart. The large sore on the left is where the chest tube went in. The other sores are where the pacing wires were inserted.
We have now been here for 8 weeks -- two full months! -- and Martin continues to do really well. Since removing the pacing wires from his chest, he has been much more comfortable! And it's been several days now since he had blood in his stool....[ abbreviated | read entire ]
You can only imagine the expression Martin has on his face -- but he's probably giving them a great big smile!
What's with the funny face?
Well, the children came and went. That was fast. It was great to see them again! We are so looking forward to getting back home to our children. Martin has really been doing quite well. He has been on the new Elecare formula for 3 full days now...[ abbreviated | read entire ]
Pitiful! This is how we all felt when we discovered more blood in Martin's stool. He's actually been having some really bad tummy aches lately and he's been struggling with it. Really feel bad for him -- poor guy.
Mommy and Martin bonding time.
We love our little Baby Martin. He's had it rough. Already 5 weeks old and hasn't been outside the PCICU room yet. Pray he gets home soon.
More blood was found in his stool (dirty diaper) yesterday morning. His feeds were stopped as a result. Ugh! More x-rays were taken and they have still ruled out necrotizing enterocolitis -- although we understand that the surgeon has ordered...[ abbreviated | read entire ]
Martin has a funny cross-eyed expression as he tries to look at the camera lens. Come to think of it, he has a lot of funny facial expressions.
Look Mom! No nasal cannula! There's less stuff on my face!
Dr. Kavarana was the surgeon who performed the 9-hour Norwood open-heart operation (1 of 3) on Martin. This is the man humanly responsible for saving Martin's life. Give honor where honor is due. We are so grateful. (Martin peering up at him).
We've been taken for a wild ride last night and have since discovered that the diagnosis was incorrect -- it was not blood at all! We've kept the original post below for reference. See update at the bottom of post for the latest. Thank you!...[ abbreviated | read entire ]
Martin, meet Justin, your big brother. Justin, say hello to Martin, the new baby of the family!
Saying goodbye to our kids until the next weekend
Martin getting better every day
We had a wonderful few days with our children here in Charleston. It was so nice to be re-united with them even if it was for a brief time. The house we are staying at here (provided by CrossBridge Ministries) seemed to "come alive" once our...[ abbreviated | read entire ]
Made it through the 48-hour NEC scare. Resumed feeds -- slowly.
Martin loves to smile! We enjoy trying to get him to smile. It brightens up our day to see his face light up.
The view from Martin's bed to the rest of the room.
They have started Martin back on his feeds today -- very slowly. They have him on 3mL/hour (he was on 21mL/hour "full" feeds 2 days ago). They are happier with his last few x-rays and he doesn't seem to be exhibiting any of the other symptoms of...[ abbreviated | read entire ]
Good morning happy baby -- second day after RA line removed
Getting a bath. Hey, stop doing that!
Bath time. He doesn't seem to mind it so much.
Last night, Martin had a tiny amount of blood in his stool (dirty diaper). Early this morning, he also had some blood in his stool. They have already done two x-rays and there is something that looks questionable to them. It's too hard to say...[ abbreviated | read entire ]