First time trying a bottle! So far so good. No 'mechanical' swallowing issues -- just have to get him to enjoy drinking something that tastes awful and smells nasty.
Look at this! We're finally getting wheeled out of here after 6 weeks of being in the same PCICU room!
In a new bed. In a new room. In the Children's Hospital now. Next stop ... HOME!
It is now Friday -- today Martin is 6 weeks old. Since the last post, there have been a number of big steps -- strides, really. He had his swallow study on Wednesday and (barely!) passed it. But passed it he did and so they gave the green light to...[ abbreviated | read entire ]
I am feeling much better, Mommy! Now if they can just get that thing out of my nose. Martin is now over 5 weeks old.
With the pacing wires out of his chest, Martin is able to sleep on his tummy for the first time. MUCH better!
The battle scars. The long line in the middle is where he had open-heart. The large sore on the left is where the chest tube went in. The other sores are where the pacing wires were inserted.
We have now been here for 8 weeks -- two full months! -- and Martin continues to do really well. Since removing the pacing wires from his chest, he has been much more comfortable! And it's been several days now since he had blood in his stool....[ abbreviated | read entire ]
You can only imagine the expression Martin has on his face -- but he's probably giving them a great big smile!
What's with the funny face?
Well, the children came and went. That was fast. It was great to see them again! We are so looking forward to getting back home to our children. Martin has really been doing quite well. He has been on the new Elecare formula for 3 full days now...[ abbreviated | read entire ]
Pitiful! This is how we all felt when we discovered more blood in Martin's stool. He's actually been having some really bad tummy aches lately and he's been struggling with it. Really feel bad for him -- poor guy.
Mommy and Martin bonding time.
We love our little Baby Martin. He's had it rough. Already 5 weeks old and hasn't been outside the PCICU room yet. Pray he gets home soon.
More blood was found in his stool (dirty diaper) yesterday morning. His feeds were stopped as a result. Ugh! More x-rays were taken and they have still ruled out necrotizing enterocolitis -- although we understand that the surgeon has ordered...[ abbreviated | read entire ]
Martin has a funny cross-eyed expression as he tries to look at the camera lens. Come to think of it, he has a lot of funny facial expressions.
Look Mom! No nasal cannula! There's less stuff on my face!
Dr. Kavarana was the surgeon who performed the 9-hour Norwood open-heart operation (1 of 3) on Martin. This is the man humanly responsible for saving Martin's life. Give honor where honor is due. We are so grateful. (Martin peering up at him).
We've been taken for a wild ride last night and have since discovered that the diagnosis was incorrect -- it was not blood at all! We've kept the original post below for reference. See update at the bottom of post for the latest. Thank you!...[ abbreviated | read entire ]
Martin, meet Justin, your big brother. Justin, say hello to Martin, the new baby of the family!
Saying goodbye to our kids until the next weekend
Martin getting better every day
We had a wonderful few days with our children here in Charleston. It was so nice to be re-united with them even if it was for a brief time. The house we are staying at here (provided by CrossBridge Ministries) seemed to "come alive" once our...[ abbreviated | read entire ]
Made it through the 48-hour NEC scare. Resumed feeds -- slowly.
Martin loves to smile! We enjoy trying to get him to smile. It brightens up our day to see his face light up.
The view from Martin's bed to the rest of the room.
They have started Martin back on his feeds today -- very slowly. They have him on 3mL/hour (he was on 21mL/hour "full" feeds 2 days ago). They are happier with his last few x-rays and he doesn't seem to be exhibiting any of the other symptoms of...[ abbreviated | read entire ]
Good morning happy baby -- second day after RA line removed
Getting a bath. Hey, stop doing that!
Bath time. He doesn't seem to mind it so much.
Last night, Martin had a tiny amount of blood in his stool (dirty diaper). Early this morning, he also had some blood in his stool. They have already done two x-rays and there is something that looks questionable to them. It's too hard to say...[ abbreviated | read entire ]
Finally get to hold him again! It's been 3 weeks since the last time we got to do this.
Caught the tail end of his smile. He was actually smiling much bigger than this but couldn't get my camera out in time!
He's so comfortable in this position -- looking into Mommy's face.
This morning the surgeon removed the last remaining barrier from allowing us to hold Martin! The RA line which goes into his chest directly into his heart is finally gone! Not only did we get to hold him (for 3 hours straight this morning!) but...[ abbreviated | read entire ]
Still enjoying that pacifier. It works wonders in keeping him happy and still.
Martin's happy face. Over 24 hours after extubation and still breathing well on his own!
Martin's worried face. You're on the right track, Martin. No need to worry.
It's been over 24 hours now since the breathing tube was removed and Martin's still doing very well breathing on his own despite the fact that it takes more effort for him to do so. His oxygen is not as consistently high as before, but it goes up...[ abbreviated | read entire ]