It's been a number of months since our last post. Life has been busy. The children are growing and Martin and Gracie are like two peas in a pod -- inseparable. Gracie is continuing to grow stronger and she learns so much day by day. Martin is a fireball of energy and personality and although he's a full year younger, Gracie tends to copy everything he does -- for better or worse. They are set to become lifelong friends and the bond between them will only grow stronger because of their shared life experience.
But today, we find ourselves back in Charleston. Martin is due for his third open-heart surgery called the Fontan Procedure. Children born with Hypoplastic Left Heart Syndrome have complex heart surgery performed at three separate stages in their development. Martin is definitely due for this surgery now because of his declining oxygen saturation levels. He has been dropping into the 50s and 60s when he is active (the normal range is 95-100). So intervention at this stage is necessary. And because it is the final scheduled surgery, it will be vitally important in setting the course for the rest of his development through to his adult years.
The circulation change as a result of the Fontan procedure is said to be hard on the body and comes with potential complications. In God's goodness, He seems to have given Martin a very strong constitution and will. Additionally, he eats very well and enjoys his fruits and vegetables. Going into this surgery, he is in the best form possible for someone with his condition. Even with that, we acknowledge that ultimately he is in the Lord's hands after the surgeons have done all that they can.
Tomorrow will be a full day of pre-op. And early Tuesday morning, the surgery will begin.
Pray with us that God will grant him a very successful surgery and a very speedy recovery. That his level of pain and discomfort would be minimal. And beyond that, that he would continue to grow and God would strengthen his heart both physically and especially spiritually. For ultimately, our highest joy will be realized when we can one day see all of our children walking in the truth (3 John 1:4).
8/11/14 | Surgery update from Jamie: During Martin's day of testing at MUSC today he started getting a runny nose. His labs and X-rays looked great but we had a nasal swab done just in case. He ended up testing positive for Rhinovirus so surgery for tomorrow has been cancelled. We are very very thankful that it was caught in time as it would have been dangerous for him to try recover from major surgery while fighting this virus. His Fontan will be rescheduled in 4-6 weeks. Thank you all for your prayers and support.
Martin's Third Surgery PhotosMartin's third open-heart surgery (Fontan Procedure) in Charleston, SC.
Jamie and I have been married since April of 2001 and have five children, Katie, Calvin, Justin, Gracie, and Martin. Please be sure to sign our guestbook and drop us a note!
On February 3, 2012 our 4th child was born with a congenital heart defect called Hypoplastic Left Heart Syndrome (HLHS). He will have 3 "staged reconstruction" open-heart surgeries early in life to reconfigure Martin's cardiovascular system to be as efficient as possible despite the lack of an adequate left ventricle. These surgeries do not correct the lesion, and are instead considered "palliative".
He already had his first (Norwood) and second (Glenn) surgeries at MUSC in Charleston, SC. Let's give God the glory in all things. We learned this Psalm together as a family some time ago and it's very fitting: "I will bless the LORD at all times: his praise shall continually be in my mouth." Psalm 34.
On November 2013, we embarked on a new journey to adopt a child from China that also had a heart defect. We are still on that journey...