I am feeling much better, Mommy! Now if they can just get that thing out of my nose. Martin is now over 5 weeks old.
With the pacing wires out of his chest, Martin is able to sleep on his tummy for the first time. MUCH better!
The battle scars. The long line in the middle is where he had open-heart. The large sore on the left is where the chest tube went in. The other sores are where the pacing wires were inserted.
We have now been here for 8 weeks -- two full months! -- and Martin continues to do really well. Since removing the pacing wires from his chest, he has been much more comfortable! And it's been several days now since he had blood in his stool. Everything has looked all clear since the change in formula to Elecare. Jamie has already started to eliminate dairy and soy from her diet (at least is trying to!) in order to give breastfeeding another go at some point in the future. He is on compressed feeds -- which means they are feeding him in intervals like he normally would eat. They will continue this feeding schedule for another day and do a swallow study tomorrow. Basically, if he does well with the swallow study, he should be ready to move to "the floor" -- which means, we will be staying with him 24x7 in a regular hospital room and taking on virtually all of the regular baby duties throughout the day and night. So, perhaps another day or two and we'll finally be out of the PCICU! Martin will finally be able to enjoy some peace and quiet -- no more of the incessant beeping monitors and alarms!
Apparently, it seems they have started to add fortifier to his feeds so hopefully this will not cause any problems. They also seem to have a shortage of beds in the step-down unit ("the floor") so that may bring some delays. We should know more by tomorrow.
Today was another very sad day as another mother lost her baby in the PCICU. Her name is Joy and she had a baby with HLHS just like Martin. Over the weeks, Jamie had become quite friendly with her as a fellow "heart mom" but her baby had a lot of complications -- the end result was that they had to turn off the ventilator today. In fact, her baby never even made it to the first surgery. It was a very sad day and perhaps you could pray with us for that family? They are Christians and so she is finding comfort in the prospect of seeing her little one again one day. It is at such times that we are forced to reflect on God's providence in healing some and not others. Why was Martin spared? Certainly not because we deserve it. None of us can demand of our Creator the right to life. We can only pray for the steadfast and God-honoring faith of Job -- "the Lord gave, and the Lord hath taken away, blessed be the name of the Lord." Job 1:21. Lord, make this family's faith to shine brightly in their darkest hour.
My heart is made glad by seeing Little Martin no longer tethered to so many wires. Even with his "battle scars," he is a beautiful little boy. I'm praying for Joy and her family. What a wonderful opportunity for Jamie (and you, Steven) to be used of God to serve as comforters to them.
How many mothers and fathers were made to rejoice by the Saviour's mercy in the days of His earthly ministry - far more I am sure than we may read of in the gospels (John 21:25). May the Lord continue His kind hand upon little Martin.
Baby Martin is part of our daily prayers here. We love the photos, and rejoice in God's goodness. We will keep praying- and also lift Joy and her family to the Lord tonight. What a privilege to pray with you all. A sister in Christ, Chris in NM Isaiah 63:7-9