Day 2 Recovery. His oxygen is still good and off of nitric oxide support.
Watching and waiting. Day 2 of recovery.
The PCICU where Martin is recovering.
It is currently 10:30am -- Day 2 of Martin's recovery and he is continuing to mend! They have him completely off of the nitric oxide and have him at 80% ventilator support and they completely stopped one of the heart medicines (Epinephrine) -- his numbers and oxygen level are still holding strong! They want to begin weaning him off of the Dopamine medicine as a next step. We are not allowed to touch him as he seems to be very sensitive to touch. Every time they have to move him, his blood pressure spikes -- perhaps he's feeling pain? So they increase his pain medicine from time to time. Other than that, he seems to be doing very well! His chest is still open of course and will be for another day or so. And he has his lullaby music playing quietly -- we believe he can still hear sounds and so perhaps he is finding some comfort in that. He looks good and his swelling is continuing to go down.
We continue to wait patiently and pray the Lord to strengthen Martin's heart, lungs, and entire body. We have so much to be thankful for. A baby beside us (Jackson) also has HLHS, but with severe complications. In fact, while we were here bedside with Martin late last night, they rushed us out quite suddenly because Jackson took a bad turn and they needed to work on him. We learned this morning from his dad that he is in emergency open-heart surgery again. They have already been here for over 2 months and anticipate having to stay in Charleston until Jackson's second scheduled surgery when he is 6 months old (they are from Greenville as well). It is heartbreaking to witness another family suffering and I'm sure they are very weary and discouraged. We told them that we have been praying for them as well.
We are so thankful that the Lord has (thus far) spared Martin and he is stable and recovering. Thank you for remembering us and especially Martin.
Update 11:30am: They brought the ventilator support down to 70% and are continuing to monitor his numbers and fluids -- oxygen level seems a bit on the low side. The respiratory specialist just informed us that although all of this is good progress, eventually when they close his chest in a day or so they may need to put him back on everything again (nitric oxide, 100% ventilator, epinephrine, dopamine, etc). But we'll cross that bridge when we get to it. One baby step at a time.
Update 2:00pm -- big step! They have taken him off the paralytic medicine completely. This is the medicine used to keep him "paralyzed" so he doesn't move a muscle. Any minute now he should be making movements ("twitches" they said) and he may even open his eyes by evening! They are doing this in hopes that he will begin breathing on his own more and more. My guess is that if he sees us, it may boost his heartrate and generally get him closer to recovery. I can't wait to see his eyes open! We will be here all day to wait for him to "wake up."
Update 6:15pm -- doctor's report. Dr. Kavarana (the surgeon) was just here. He said Martin could not be better! He said he was really worried about him the night after surgery, but he has really turned around and proved to be a very strong boy. He says if things continue to improve like this, he may close Martin's chest tomorrow morning between 8am and 9am. Martin is still sleeping and showing no signs of waking up yet. They said he would start to take breaths on his own before making any kind of movement, and he hasn't done that yet. It'll just take some time.
Update 10:00pm: Still waiting for movement. Still no indication that he's taken any (of his own) breaths yet. They said it's completely normal to take this long. They have scheduled to close his chest tomorrow morning so we will need to get back to the house soon to get some much-needed rest. But for now his numbers and oxygen level still look right on target. The nurses are here and will monitor progress through the night. Lord willing, we may greet Martin in the morning -- finally awake out of his deep sleep...
Just read your blog. Thank you so much for keeping us all informed. We have been lifting Martin, you, the doctors and nurses before the Lord in prayer. We are encouraged by his progress and all that the Lord is doing in his little body. God is GOOD!
Brother Steven, I just wanted you to know that I just heard about your son's situation, and I am praying for him. I will stayed posted on his condition, and share with other prayer partners at our church, Let's keep looking to God, brother. I appreciate so much the great work Sermon Audio does. Our little ministry is reaching around the globe. We will keep praying for you and your family. God bless you!, Charles Woodruff