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The morning of the surgery |  | 
Only an hour to go before the surgery |  | 
Martin surrounded by his buddies the morning of the surgery |
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Our first visit to see Martin after getting through the difficult 9-ho... |  | 
We hope to continue to play music and talk to Martin even though he is... |  | 
Pray for our dear Baby Martin. |
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Martin and his faithful turtle friend beside him |  | 
Good morning Martin! The morning sun rays are shining through the wind... |  | 
Our regular route to the PCICU at MUSC. |
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The PCICU where Martin is recovering. |  | 
2/8/12 11:00pm: Martin 24 hours after surgery listening to lullaby mus... |  | 
Watching and waiting. Day 2 of recovery. |
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Day 2 Recovery. His oxygen is still good and off of nitric oxide suppo... |  | 
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Day 3 Recovery. Martin is awake! One-week-old Martin wakes up to mommy... |
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Martin's chest is closed! Hooray! |  | 
Our daily view from the parking garage connector to MUSC. |  | 
Day 4 Recovery. Still a very sleepy baby. Poor guy has daddy's wild ha... |
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Nurses about to do "suctioning" of his lungs. He doesn't like this and... |  | 
Peaceful again after the suctioning ordeal. |  | 
After the rough night. |
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Day 5 Recovery. Chest tube removed and stable again after a rough nigh... |  | 
These stuffed toys have been so helpful propping up his legs and arms... |  | 
I guess one of the nurses did this. This is attached to the oxygen lin... |
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He looks very different with his eyes closed, but he's got big eyes wh... |  | 
Mommy, take me home! Poor guy really struggles with the tubes. |  | 
He does not like that breathing tube. The thing that he hates the most... |
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Taking every precaution. We are not sick ourselves (yet) but our kids... |  | 
Martin trying to sleep with all that tape on his face. |  | 
Looking at mommy and daddy's face! I wonder what he's thinking? That t... |
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My! What big feet you have, Martin! |  | 
As he becomes more awake and alert, he seems to be more uncomfortable.... |  | 
Martin still fighting through the recovery. This picture was taken the... |
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The morning after putting him back on paralytic and re-inserting the b... |  | 
Martin looked rather pale to us and not well after Sunday. It's been s... |  | 
He looks better by the end of the day. But still very thin and rather... |
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They now have IVs in his hands. One in each hand. Looks uncomfortable... |  | 
Justin celebrated a birthday. He's now 5. We love all our children dea... |  | 
Martin is making a strong comeback in his recovery. Eating well. And o... |
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Abject misery! Moments before extubation. Trying to keep him calm to a... |  | 
MILESTONE! Breathing tube is finally GONE! His comfort level just went... |  | 
MILESTONE! Breathing tube is finally GONE! His comfort level just went... |
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We are all breathing a little bit easier now that the breathing tube h... |  | 
A beautiful sight! In my opinion, the best screen yet of that breathin... |  | 
Our other children are so happy to be safely back at home in Greenvill... |
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Look who took to his pacifier right away! Way to go, Martin boy! |  | 
Martin's happy face. Over 24 hours after extubation and still breathin... |  | 
Martin's worried face. You're on the right track, Martin. No need to w... |
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Martin keeping an eye on us to make sure we don't go anywhere. |  | 
Still enjoying that pacifier. It works wonders in keeping him happy an... |  | 
Finally get to hold him again! It's been 3 weeks since the last time w... |
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Caught the tail end of his smile. He was actually smiling much bigger... |  | 
He's so comfortable in this position -- looking into Mommy's face. |  | 
Tuesday morning -- second day after RA line was removed. |
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Good morning happy baby -- second day after RA line removed |  | 
Getting a bath. Hey, stop doing that! |  | 
Bath time. He doesn't seem to mind it so much. |
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Sweet dreams baby boy. Made it through the first 24 hours without feed... |  | 
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Made it through the 48-hour NEC scare. Resumed feeds -- slowly. |  | 
Martin loves to smile! We enjoy trying to get him to smile. It brighte... |
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Martin loves to smile! We enjoy trying to get him to smile. It brighte... |  | 
I love to smile! |  | 
The view from Martin's bed to the rest of the room. |
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Martin almost cracks a smile at his big sister, Katie |  | 
Martin trying to figure out his big brother, Calvin |  | 
Martin, meet Justin, your big brother. Justin, say hello to Martin, th... |
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Martin getting better every day |  | 
Martin looking into Mommy's face |  | 
Martin, what are you thinking about? |
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The kids come to see Martin! He's now one month old! |  | 
Katie's reaction after hearing that she may be able to hold him! |  | 
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The kids came to Charleston for a quick weekend visit and we had a gre... |
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Family portrait -- Martin is one month old now. |
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Saying goodbye to our kids until the next weekend |  | 
Saying goodbye is so hard to do. We had a great time with our kids --... |  | 
Look Mom! No nasal cannula! There's less stuff on my face! |
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Daddy trying to get Martin to smile! |  | 
Martin getting an eyeful! |  | 
Dr. Kavarana was the surgeon who performed the 9-hour Norwood open-hea... |
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Martin's typical worried expression. |  | 
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Martin has a funny cross-eyed expression as he tries to look at the ca... |
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Pitiful! This is how we all felt when we discovered more blood in Mart... |  | 
Feeling better and more relaxed after the nurse gave him a does of oxy... |  | 
We got a smile out of him the day he was having tummy trouble. |
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Another smile. |  | 
We love our little Baby Martin. He's had it rough. Already 5 weeks old... |  | 
Mommy and Martin bonding time. |
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He had a bad case of it for a few days |  | 
I am feeling much better, Mommy! Now if they can just get that thing o... |  | 
A second weekend visit from the kids! |
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Enjoying a beautiful day with the kids by Shem Creek |  | 
Exploring the shrimp boats at Shem Creek |  | 
Weather was a tad chilly as we took a stroll through the Mt. Pleasant... |
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Really pretty park with a long dock extending into the Cooper River. |  | 
USS Yorktown aircraft carrier |  | 
Walking the big dock by the Ravenel Bridge |
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Visiting Martin again in the PCICU |  | 
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Katie and Calvin enjoying a chat beside Martin |  | 
Calvin loves his little brother |  | 
The kids getting a good look at little Martin |
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Justin not quite sure what to do with a crying baby. |
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You can only imagine the expression Martin has on his face -- but he's... |  | 
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What's with the funny face? |
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The battle scars. The long line in the middle is where he had open-hea... |  | 
With the pacing wires out of his chest, Martin is able to sleep on his... |  | 
First time trying a bottle! So far so good. No 'mechanical' swallowing... |
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Getting ready to get out of the PCICU! |  | 
Gotta remember to bring the picture of the kids to the new room. |  | 
Look at this! We're finally getting wheeled out of here after 6 weeks... |
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Big move for Martin. |  | 
Getting setup in the new room. 8th floor of the Children Hospital in t... |  | 
In a new bed. In a new room. In the Children's Hospital now. Next stop... |
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He loves the breastmilk! He drank 65mL in 30 minutes by bottle! |  | 
Martin and Mommy share a moment after a great session with breastmilk.... |  | 
Martin is all worn out after drinking a great meal! Apparently breastm... |
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Martin finally out of the PCICU. |  | 
Martin had 24 hours of breastmilk which fattened him up (this is a goo... |  | 
We ran out to the store and got some things to apply to the ring of th... |
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Martin passed the swallow study with flying colors the second time aro... |  | 
For the 24 hours he was on breastmilk, he was one happy little baby! |  | 
Happy to be on breastmilk -- even if it was for 24 hours. |
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I'm much happier now! Martin without the feeding tube. We just learned... |  | 
Packing our stuff and getting ready to leave the hospital! |  | 
Martin gets his final echocardiogram before we are discharged. No prob... |
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Martin ready to get out of the hospital and enter the real world! |  | 
Martin, our miracle boy, with that sly smile of his -- at home at last... |  | 
Justin looking at Martin sleeping in his swing at home. |
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The first night of Martin's homecoming! So great to be reunited with o... |  | 
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Martin finally safe and sound at home! Our journey is finally over --... |